The introduction of National Disability Insurance Scheme (NDIS) was almost a disaster for Moss Vale resident Bruce Mumford.
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Bruce was diagnosed with Multiple Sclerosis in 1990 and needs services to support him day and night.
He used the NDIS’ calculating table which said he would need at least $211,000 each year.
Mr Mumford said he was led to believe his expenses would be covered under the NDIS.
But instead he received an email which said his allowance had been calculated at $80,000 annually.
“At the very least it would have been a complete financial disaster for us, leaving us no choice but to sell the house which we have only recently renovated,” he said.
“Louise [my wife] would have had to quit her job so she could look after me for the missing two thirds of my care.”
That figure would have meant that Mr Mumford would be about $140,000 short of what he needed for his care.
But while the situation appeared grim for Mr Mumford, with the help of Member for Whitlam Stephen Jones, he was able to sort out his NDIS plan.
Mr Jones met with Mr Mumford on November 4 and raised his case with Minister for Disabilities and Services Christian Porter.
After speaking with Mr Jones, Mr Mumford said he was contacted by the National Disability Insurance Agency (NDIA) which helped him sort out his plan.
But Mr Jones said this was not good enough.
“This matter has been unnecessarily distressing to Bruce and his family and is contrary to what should happen in the provision of disability services,” Mr Jones said.
“It is clear the process of assessment has not been properly undertaken. In addition, the avenues for consultation and review are inadequate. I hope that no other clients of NDIS end up in this situation.”
A spokesperson for the NDIA said they could not comment on an individual’s circumstances.
“The NDIA makes decisions about which supports would be reasonable and necessary for a particular participant based on the National Disability Insurance Scheme Act 2013,” they said.
“If a participant thinks a decision made by the NDIA about them is wrong, they can submit an application for an internal review.”