Rhianna Fox shares her struggles of getting a Jansen de Vries diagnosis for her daughter

By Malvika Hemanth
May 20 2022 - 9:00am
UPHILL BATTLE: Jarod Collins and Rhianna Fox with their children James and Odessa. Odessa has Jansen de Vries syndrome and is only one of two people in Australia who has the syndrome. Picture: Adam Trafford.

A child's early developmental stages, be it their first crawl, their first step or their first walk, is something many parents eagerly anticipate and cherish. However, one Victorian Central Highlands mother has had to wait longer than most to experience these key milestones with her daughter.

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